tag:blogger.com,1999:blog-3139696084392272622.post4920161969219728668..comments2024-03-29T00:31:51.931+00:00Comments on HyperCRYPTICal: DNAR does not equate to DNThyperCRYPTICalhttp://www.blogger.com/profile/11967085628384237933noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3139696084392272622.post-69097827743566100992011-05-16T09:15:56.778+01:002011-05-16T09:15:56.778+01:00One thing that has helped is a 'communication ...One thing that has helped is a 'communication passport' These are becoming more common for people with a learning disability, take a standard format and briefly describe care needs and other critical information. They don't work in all circumstances but do give carers something to justify what is needed when things look like they are going awry. They've helped us get sensible care protocols for medication etc. when in hospital etc.. May be helpful elsewhere for vulnerable but less articulate people.ned ludd carerhttps://www.blogger.com/profile/03087056514386460357noreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-64994382535840723542011-05-06T18:53:07.427+01:002011-05-06T18:53:07.427+01:00Hi Ned
I can understand why you have an end of li...Hi Ned<br /><br />I can understand why you have an end of life care plan for your son as you know him well and understand the futility of CPR in his particular case.<br /><br />I can understand your fears too in the event of your son being hospitalised. With staff shortages, etc it is difficult to achieve any personalised care and the problems you face with staff not trained in disability is an added burden for you.<br /><br />To a lesser extent - the same problem is faced in those with dementia - a lack of understanding of the needs and abilities of the sufferer. We fear for our residents when hospitalised and several relatives - apart from those mentioned in the post, request that in the event of illness - their loved one stays in the home.<br /><br />We always send a detailed history of medical problems and all aspects of the residents abilities and needs with reference to daily living when they attend A&E - but it is a rare occasion for this info package to be transferred to the ward with them.<br /><br />Rant as much as you want, my friend.<br /><br />Anna :o]hyperCRYPTICalhttps://www.blogger.com/profile/11967085628384237933noreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-43204399861220728942011-05-04T15:14:32.082+01:002011-05-04T15:14:32.082+01:00We've done an end of life plan for my son, wit...We've done an end of life plan for my son, with help from one of the care providers and the PCT. Involved us, him and all his nursing team. A hard process but glad we did it. They now understand why CPR would be inappropriate - it would cause so much damage he'd get little more time and lots more pain (shape of spine, lungs etc.) and it probably wouldn't work for him anyway. Having said that, they understand about day to day care being essential. What worries me isn't his nursing team - it's if he goes into hospital with people who don't understand him. This is partly why we avoid hospital admission at all costs. Even with a communication passport and pre-written care protocols agreed, every experience we've had of hospital with him has been a nightmare in practice. Insufficient staff, not trained in disability, well meaning but under too much pressure and nowhere near enough nurses usually results in us discharging him as soon as he's well enough to be moved.<br />Rant over.ned ludd carerhttps://www.blogger.com/profile/03087056514386460357noreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-53884444051051718442011-04-30T20:53:38.437+01:002011-04-30T20:53:38.437+01:00I'll have a look for it. It was about five yea...I'll have a look for it. It was about five years ago, so might be tricky to find, but it definitely happened. Worrying stuff. The Scottish Patients' Association is dealing with a lot of stuff relating to the LCP up here as well.Julienoreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-91574583074029951212011-04-30T19:27:21.316+01:002011-04-30T19:27:21.316+01:00Did a bit of research Julie and couldn't find ...Did a bit of research Julie and couldn't find anything re Hammersmith Hospital - but can well believe it. <br /><br />One relatively young resident attending A&E was asked if she wanted resucitation should she die and she said "No." A few minutes later when realising what she had been asked, quickly changed this to a "Yes!" What would have happened (in her then vulnerable state) if she hadn't realised what she had said "No" too?<br /><br />I did find stuff relating to the fraud. Also learned that in 2008-9, NHS Counter Fraud Services achieved potential savings of £9,946,030 following prosecution in 69 criminal cases!<br /><br />Being a NHS manager does have its perks - as long as you are don't get caught!<br /><br />Anna :o]hyperCRYPTICalhttps://www.blogger.com/profile/11967085628384237933noreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-33552072706690806192011-04-30T15:21:36.281+01:002011-04-30T15:21:36.281+01:00Yep, I remember a while back an article about Hamm...Yep, I remember a while back an article about Hammersmith Hospital. They were handing forms to people as they went in for treatment and they thought it was for cardiac resuscitation. The patients didn't realise it also applied to providing drips and nutrition. The good old Mental Capacity Act struck again. Btw, one of the Hammersmith trustes has just been done for fraud as well.Julienoreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-17273434594794644842011-04-30T15:03:09.311+01:002011-04-30T15:03:09.311+01:00Indeed it is Dave. The older we become - the more...Indeed it is Dave. The older we become - the more we are viewed as a burden on society and the more dispensable we become.<br /><br />Anna :o]hyperCRYPTICalhttps://www.blogger.com/profile/11967085628384237933noreply@blogger.comtag:blogger.com,1999:blog-3139696084392272622.post-26383613593392832242011-04-30T11:56:20.128+01:002011-04-30T11:56:20.128+01:00Another step back to 1984?Another step back to 1984?Dave Kinghttps://www.blogger.com/profile/08430484174826768488noreply@blogger.com